Thank You, Doctor . . .

There was a time, oh, not so long ago that friends Michelle and Peter and Nick would remember that I sat in a chair in a public forum and wept because I never became a doctor.  Friends recommended nursing, but on my first day my instructor, wearing one of those origamitized hats mentioned the adjective caring in hundreds of examples.  By the end of the day I’d grown so weary of the word caring I returned my shiny new mules and knew I didn’t have the dedication to the lives of total strangers simply because your unyielding care and uncompromising affection for humanity seemed as close to grace as most of us will ever know.

I’ve been very lucky to have been able to continue my 20 year relationship with my primary care physician.  In 20 years we’ve both learned a lot about each other: he more so of course, especially with those physician distributed x-ray glasses (and we thought they were some manifestation of a cartoonist’s imagination) because how else could doctors have the degree of insight simply by engaging in an innocent conversation.

I’ve been thinking lately that all these men and women who voluntarily step up to education and raise their hands so strongly, so surely, and so hopefully that witnessing that depth and degree of service to strangers must be one of the most moving examples of humanity stepping into a life where their life is secondary.

Why they do this happily, proudly, compassionately in order to be in the presence when most of us aren’t gussied up for prom astonishes me and thanks God for loaning humanity a few hundred thousand angels to leave Heaven and come to earth (by way of unimaginable hours pouring over manual after manual after manual and I can’t even remember 3 things to buy at the grocer’s), then share their own type and degree and experience of the comfort they know to be true once we let go and become fine examples of colorful balloons rising higher and higher and out of sight but not out of mind.

To all those selfless and defenders of the weak or ill or mentally compromised or children or any other of the millions of disenfranchised a mere thank you will never repay your kindness. But maybe God’s set up a 401(k) for you in heaven.

 

 

When I Was A Boy, A Doctor’s Insight Was Law

 

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When I was a child and was literally dragged to Dr. What’s-His-Face for an annual check-up (less a check-up and more a ritualistic cadence of tsk, tsk, tsk’s) as he poked and kneaded and cold-handedly fiddled with my . . . which backs away from coldness . . . and shy’s away from evaluation like a cub scout whose self-built car elicits jeers from his Scout Master (who also happens to be his dad).  The snap of gloves and odor of soap which resembled anti-freeze gave the doctor time to compose his subtle and sensitive conclusion:  “He’s too fat and getting fatter and his fat is hiding his . . . which, for sanitary reasons may require the removal of . . . which was when I buckled my Indian Beaded Belt and disappeared until hours past dusk when a neighbor found me shivering beneath the front porch.

That incident was a painful secret which I’ve carried on my back for fifty years and continues to cause retreat when doctor’s or lover’s reach out.  Such a sad burden to carry because of one unsympathetic phrase from a stranger who had no right being a pediatrician.  I often wondered how he treated his dogs.

My mother’s ignorance and prostrating to figures of authority always meant that any run-in with any adult possessing even a pinch more aacopauthority than her resulted in stern and week-long pain.  Just what exactly did these arrogant and sadistic adults possess that was never crossed?  They had been appointed to their position because of educated insight which was never, ever, EVER questioned..

Which, of course, perpetuated a multi-century tradition which has continued even to this day.  Most doctor offices have a small-framed notice somewhere above their “All services must be paid TODAY!”  reminder which reads something like,  “My profession hasn’t been questioned or challenged in three hundred years, so don’t try to be the first today!”  And in you go to be examined, quizzed, and questioned only to receive a prescription scribed in ancient Egyptian and an “order” for physical therapy.

aaangryguyDo I sound somewhat angry?  Of course I am!  Doctors get paid enormous salaries yet complain about the escalating costs of malpractice insurance.  Malpractice insurance exists because professionals are trusted and believed and paid.  And for this degree of faith we get an educated guess of what might be ailing us.

But this is what I’m REALLY angry about: Two doctor’s at Froedert Hospital assured me my brother Rich did not suffer a stroke based on a CT scan.  It was 48 hours later when I insisted they perform an MRI.  Voila’!  A clot in a vein feeding the occipital lobe (responsible for eyesight).  Because of unconscionable arrogance my brother is legally blind while these two doctors suffer NO consequence.  Upon discharge from Froedert, I was told that Rich was totally blind due to A) The Stroke and B) A severe seizure two days later.  I made decisions based upon the information told to me by staff in the Stroke Unit.  And guess what?  He isn’t blind!  Albeit his eyesight has been significantly compromised, but his field of vision is approximately 17″ in diameter!  And the staff at Froedert?

And the worst example of guesstimating occurred this past weekend when Rich suffered a severe heart attack.  The errors in order of aapuzzleddocappearance: A) Someone at the acute rehab facility removed his DNR bracelet, yet never informed the paramedics that he had a DNR order in effect; B) The paramedics, unaware of the DNR order, couldn’t inform the ER staff;  C) When Rich went into arrest they performed heroic measures to yank him back to life including five minutes of chest compressions resulting in several broken ribs and the insertion of a temporary pacemaker to maintain his heart rate (why didn’t anyone call me while they repeatedly beat Rich?  They called me after!)  D) An ICU doctor called me and informed me that the ER stepped beyond Rich’s wishes and now, NOW I’ve got to decide if and when we reverse their . . . their, what . . . their adrenaline infused jump to action?  And when YOU do decide he will . . . be gone.

For nine hours I held firm to Rich’s wish: DNR. And I would honor his wish just like I’ve always honored him. And I aastoplightwouldn’t allow my own emotion, hope, or desire to shake my resolve. I spent nine hours picking up strength like a child picks dandelions. And upon my arrival at his room in the ICU he was semi-conscious, breathing on his own, and occasionally howling in pain as he coughed with broken ribs. The equivalent of The Cuban Missile Crisis was over and Rich, contrary to what the ICU doctor emphatically informed me, was alive, on his own, without my intervention. And even though he’d crossed that line, he’d come back, I think, just so we could laugh at the old, standard jokes as though it was the first time we’d heard them!

And those doctors? The heroic and uninformed professional, and the cardiac-specialized professional made two BIG mistakes and continue to work without consequence for their egregious and painful errors. Alas, that three hundred year old tradition continues.

 

A Story For All Of Us

apartyMania is rich with almost-entertaining stories of bravado, of haphazard action, of disobeying most laws, of discarding sexual partners like “he loves me, he loves me not” petals.  But to a Manic, his/her episode could last years resulting in an incoherent swath of personal wreckage whose repetition finally drained even a mother’s irrevocable devotion (tucked in the coffee can behind the flour); The Manic loves a great party yet never buys a round.  The Manic’s desperate all in bluff with a pair of five’s causes a stumble, then a slip, finally sinking to Mania’s Skid Row: rancid, broke, estranged, lost, and nameless.  Until Sanity emerges from her safe place dragging you past leering, inflated, lobby guards who toss their opinions about each other like outfielders in a softball game.

alowlandSanity does her best to shield Mania from their sickening taunts; too late: liking to the daring distillers in Scotland (less than two %) who cross the authority of majority by bottling their whisky unfiltered and unadulterated, Mania scoops up her life’s residue and bits of character and leaps over the guard stand tackling two and beating the outspoken guard screaming, “However I am, I’m still human!”  It is said three guards and a janitor finally regained control and thus depositing Mania somewhere deep within the bowels of Sanity.

At night, seconds after bedroom lights dim, from somewhere very near or very far, Sanity faintly hears Mania’s outcry, “However I am, I’m still human . . . “ascottishgirl

The Time Spent To Read This Post, Equals The Time You Have To Save Your Life

Back in 2008 when the shit storm incinerated the first 20 years of my adulthood, I made an oath while dragging what’s left of a . . . of a bespoke walking stick through four inches of gray ash – some sizeable went aloft and rode a breeze – only to land in some other year; this oath was directed at loss, or better, surviving loss which is always, always more painful than the combustion of mortality which is hard-wired to flee extinction.

Appointed to this life: Two tiny, perpendicular scratches amidst millions of other’s noting everyone’s start and finish on (what we’d like to believe) linear straight-edge of time. And my time – time as living – a selfish amalgamation of loneliness, caution, exposure, intimacy, maturity, judgement, patience, learning, strife, letters, confessions, achievement, and the likely propagation of another generation or the unlikely dog-eared page noting a dead end by a period placed unerringly after the last letter of the last name annotating The End, A Willful Extinction.  The simple decision to stop production thus beholden to past generations, or, the decision of propagation thus bound to the future.

We’re putting a stop to this tributary of our bloodline; my older brother never purposely or haphazardly discovered the merits of fatherhood, and I, being of the gay-persuasion fell in-love when fatherhood and matrimony were simply off-limits; thusly denying my partner and I any marginal hope to have children.  My partner yearned to have a child, Jack (because I simply grew tired of our constant referral to “It”), but by the time the stork delivered to same-sex households, I, in all honesty, was too old and too tired and too responsible to entertain my partner’s fundamental need to nurture.  My father was well beyond my reach; that life, that engaging and interested life, was at least a decade before I consciously understood that I was bereft of any gargantuan, mitt-like hand to hold.  And that sadness burrowed deep, deeper than any other heretofore denial ever tunneled.  And honesty foretold of my family’s dearth in the health department by my adult-life diagnosis of a mental illness, a disease, not a sickness or an infection or a fever but a disease, not an alien landing, not a vampire, and not a plague, but a disease nonetheless. Mental illness is handled, not treated but handled by this nation’s body politic.  It’s a dispassionate and treacherous handling, like the negotiating cop that placated the felon’s demands until one, perfectly aimed .32 caliber round stops the demands. “They” know how to dilute the alleged discrimination; the mistreatment of patients in county facilities;  blaming us, the patients, for their on-going ignorance and antiquated seclusion as a “well-informed, empathetic, and public safety response” to the irrational and grossly illogical . . . blah-blah-blah. . . Um, hello, hello? (is this thing on?) mental illness is a disease as bona fide as cancer or chronic kidney failure (except mental illness lacks a “celebrity endorsement).

And yet, we’re not alone: patients-in-general have devolved into a 15-minute generic; that is, the disappearance of importance, the disinterest of ailments, suffering, and cause.  Today’s Western Medicine Patient has become an Accounts Receivable entry in the ledger; a doctor’s statistic of efficiency; appointment number 58.  We as patients have been reduced to a test result followed by a prescription or passed along like a troublesome foster child to a series of specialists and more tests and more prescriptions.

It’s a cold and alienating model of efficiency and profit, and we, the patients, the commodity are fought over by insurers and institutions chanting “To Hell With Life!”

One Step Forward, Two Steps Back

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A few weeks ago I was incapable of simply managing daily routines such as bathing; I couldn’t process dual stimuli so if I was brushing my teeth and a faucet was turned on my attention went to the running water and my brushing slowed to a stop as though someone had killed the power. There was no conscious thought besides a gnawing, chewing darkness as though black velvet curtains had been suddenly drawn, shutting out the noonday sun. If I was present I was only present to the fact that I had, almost immediately fallen down a deep tunnel of which there was no light and no escape and no orientation. Or better, as though I had been swallowed by the immediate mud-slide of my life and in complete darkness and suffocation I simply held on to the one hope that maybe my prescription would act as a breathing tube offering me much needed oxygen as Nick, my psychiatrist and friends and family kept begging for me to hold on as help was on the way.

Two days ago I traveled north to Milwaukee to spend a couple of days with my older brother. We sat for nine hours the first day and six hours the next simply talking. Well, I talked and in a profound gesture of brotherhood generosity he listened interjecting sparingly opinions. It was an exhaasadguyusting experience met with fatigue, resistance and weeping, but I plowed through years of illumination, insights and epiphanies. It was the first time that I was able to track the experiences as they evolved much like tracking a lion or bear by using their footprints in a densely green forest. It was the first time that I was able to collect and sort, catch and dissect, speak and understand a monumental array of thoughts, failed expectations, compromises, distance and pain. My life for the past three years had been laid out before me like a table at Thanksgiving; every piece in its place awaiting their purpose.

Each day my energy has slowly begun to return and I grow stronger. I am still wobbly and use the assistance of a cane to walk; my gait is slow as I amble to the post-box or to the doctor; I often lean upon it when I tire or grab a hold of a fence or the arm of Nick.

But the most important, painful, and fool hardy admission was that I had erected my life cantilevered and precipitously atop a ravine simply adepressedman1for the view.  Then one evening a mud-slide swallowed me, my partner and his family, my career and others at work, my family and friends.   And now, standing at the base of change, the annihilation of my overlooked life, I now stand alone before this devastation, try to catch a glimpse of any familiar object in order to delay the inevitable: to once again try to salvage any pain my uncaged manic self inflicted