The Final At Bat – Chucking His Things

aa-3years

It took my brother 3 years after my mother passed away before he had the courage to go through her things, laugh a little, cry a lot and much like a funeral service, put articles of meaning to her in boxes and stowed them in a place surely to be forgotten in some hard-to-reach corner of the attic or dark corner of the basement.

After that one day when we finally removed the evidence of my mother, we have not, not even once, discussed those boxes or rummaged around to discover them.  It was as if, like herself, her belongings were put to rest.  But I know for certain that that Sunday afternoon was the most painful day of my brother’s life.

And now it’s my turn, with the exception that there’s nothing I want to keep.  I don’t want to remember him by furniture or china oraa-nothing artwork or clothes. Nothing, not trophies or photographs or clothes or christmas ornaments could possibly compare to the degree of intimacy and occupation I put into motion as part of a strategic plan to keep my brother solvent, without jeopardizing my life in Chicago.

I invaded the privacy of every nook and cranny of his life; I strong-armed him to go to an attorney to draw up the correct documents. I took over his finances. I questioned every single charge on physician statements. I carried a valise with copies of every important event that produced documentation at the ready, attorney drawn HIPPA forms which provided, without question, unfettered access to every health insurance plan and their schedule of benefits, physician bills, EOB, ridiculously high deductibles in lieu of capping monthly premiums, and finally negotiating Medicare physician costs (if they take Medicare), (non)compliance with orders to manage his chronic maladies gain access to all of his medical records back to 1985. There aa-occupationwasn’t a single part of his life that I legally did not have access to or was managing or that I would be denied access. In essence I represented my brother, except those requiring an actual body. And frankly, I think he harbored significant anger and to a large extent resentment. But if I and my partner were to first pull him out of his morass, I needed to take extreme measures and I needed the legal system as my wing man. And what evidence do I have to draw this conclusion?

The Best Friend relationship which I had so cherished before I commandeered his life was, at once, extinguished. The day that Social Security deposited his first monthly benefit he furtively initiated a quitclaim of my occupation and immediately liberated his Self from my subjugation like a dog freed from its leash and running, really running, the odors and aromas of independence challenging his speed, agility, and actions of being, in the simplest of terms, a dog.

And I think that’s precisely what occurred when his income was deposited into his account and he didn’t wait for permission or evaluation or reconciliations. It takes a desperate man to abdicate the course of his life and a man aching with humiliation to admit he doesn’t possess the forbearance and seasoning required to navigate the craggy cliffs of reinventing oneself at fifty-eight.

aa-boatwheel

The moment we cleared danger however, he was resurrected in action not in speech and said, “Let go of the wheel boy, I’ll take her from here.”

Time To Unbutton the Years

For my very dear cousin who recently shared an activity she pursued from habit for 2.5 years of her life, and of which struck a deep chord within me which continues to resonate.  Bless you, M.D.

In over 150 posts to this blog, I feel as though I’ve failed to pull aside the curtain and let you see what I’ve been hiding.

Just put the lid on the stockpot to simmer and much of the household has gone to bed except Jenni who, like a good night watchdog, checks on me periodically (usually amidst a stretch and a yawn). And while the hour is late, I must finish this post. It’s time to unbutton the years and feel the spring of irresponsibility.

I take the practice and restraint of writing very seriously. Not to seem austere, but, as one callous director yelled at my turned back, “Writing is a very lonely way to express yourself!” Prick.   

But what remains true to type is that writing is painful and exhilarating and disliked and poorly reviewed and rewritten and rewritten and rewritten and moving and lucky and dangerous and a coup de grace terminus dissolution seductive lustful adoring and painful. My temperament since eighteen was writer; not a decorated writer but a prime writer. And Blogging?  The Practice (writing) and Restraint (never “what,” but always “when”) to lose the fear that my voice is gone.

Written earlier: Wanted It On Paper (or pixels, I suppose):

My desk is a mound of memories threatening my Mac like English Ivy.  Buried are unopened envelopes addressed to my brother – heat, electricity, cable – things he felt or used or watched – things that touched him in some real way – and taken for granted . . . except to those left behind to clean up someone else’s party, but in this case they’re the pieces of someone else’s life. The pile reads like those pitiful Monopoly deeds, Water Works and Electric Company. Vacancy ignored the utility’s initial bill. Ignored utility’s send out “Reminders of bills” or “bills” or “past-due bills” or “bills posted by collection agencies,” like rounds of mortar fire.

Written recently: Must complete this night:

I’ve got to stamp Addressee Deceased; Please Return to Sender with a fake heartless blasé poker face, constantly pushing aside cemented memories like freeing a sedan adrift in a blizzard so I can muddle, disinterested, of who or what or when he felt a gap in his comfort; and yet, these envelopes represent the healthy, sound, and clean gaps in his comfort. Then deliberate vague hints appear like indiscreet, taedium vitae lovers pursuing liberty. The utilities remain, but a couple, then a few, then many of these envelopes appear from unpronounceable practices and departments and unfamiliar hospitals and ambulance companies. There’s no curiosity daring me to open the envelopes like cracking open a diary or handling an 8×10 envelope forked-over by a neo-noir gum-shoe. I’ve ransacked his apartment three times looking for impossibly to find documents. A Mid-Way entertainment like curiosity disappeared the night my partner (my partner judiciously picked and packed, while each shirt caught my attention like a bride-to-be in a Tiffany  & Co. (except the diamond’s wink promised the future and these shirts promised . . . promised . . . recollections of our past and the further removal of him from his home.  I packed  a few comforts but my partner shouldered the lion’s share (you know, kid-going-to-camp stuff sans the pair of linty Gobstoppers) for his transfer to an acute-care facility (e.g. nursing home.).  Later he referred to leaving the hospital and signing-in to the sub-acute rehab facility as his One-Way Ticket.” ˆMid-day Sunday while we were thumbing through brochures and page after page of smiles: Rented smiles; Directed smiles; “I’m going home after this,” smiles, the truth caught in my throat like a chicken bone as he asked the one question, that one impossible question that I begged the All-Knowing to prevent him from asking, he asked, “Am I going home?”  My weakened attempt at steadiness crumbled as quickly as ancient foundations beneath the burden of progress. I must remain impermeable, I reminded myself on my way to the restroom. After a very brief phone call my partner knocked, then opened the door to see me sitting on the floor.  Through three decades of sobbing, fractured words, ardent hands he understood: He asked the question! The question to which I dragged and lifted and choked-back and detoured the answer (of which he’d never hear from me. Please, I begged my partner, please go sit with him and chat and blame my expeditious run for the restroom on anything but the truth. Because I can’t stand it yet, and he’ll just die when he finally does here that he’s never . . . never returning home.

My Brother Rick (aka Dikes, Rich) Condition Post-Stroke

asstroke3Last Thursday, a few minutes past noon, I called my brother Rick in Milwaukee (it had become a ritual of sorts especially while driving), and he answered in an odd tone which gave me pause. He began to complain of escalating nausea to which I urged him to see his personal physician.  He failed to remember his physician or the terrible diabetic wound which almost led to amputation or his two-month in-patient hospital stay. I astroke1told him I’d call 9-1-1 and ask that he be taken to West Allis Memorial Hospital ( policy dictates patients be taken to the nearest hospital). However the paramedics discovered atrial fibrillation (fluttering heart beats) which alternately peaked and diminished and therefore paramedics informed me that they were headed to a critical cardiac unit at St. Luke’s Medical Center.

However, St. Luke’s didn’t have a bed open, so Rick was taken to Froedert Lutheran Medical Center. After tests and a CT scan the ER team began antibiotics to stave off a small area of pneumonia in his right lung.  Rick remained on the general medical floor until the results of an MRI showed he’d suffered a severe ischemic stroke (an obstruction within a blood vessel supplying blood to the brain) in the occipital lobe (at the rear of the skull and is responsible for vision). On Sunday afternoon he was transported to the Stroke Unit (one of just astroke2a few in the U.S.) where he was resting comfortably.

On Monday, June 18 Rick suffered a significant seizure which greatly diminished his short term memory and eliminated the peripheral vision on his right side.  I’ve visited and talked via telephone with him this past week.  The cadence of his speech has slowed, he’s practically immobile, he’s approaching clinical blindness, and finds difficulty in fundamental motor movements like holding a cup.  But as he told me earlier this week, “I ain’t going to be like this forever, you know!”

I’d like to ask that anyone reading this post to consider sending him a get well card.  I’m sure your sentiments would help replenish a hopeful spirit during difficult times.  For those of you who send cards, thank you; for those that haven’t, please reconsider.  Send your cards to:

Richard Didrickson
Froedert & Medical College of Wisconsin
5-NW Nursing Unit
9200 W. Wisconsin Avenue
Milwaukee, WI  53226