The Night My Liberty Was Nullified (Thursday, July 10, 2008)

Thursday, July 10, 2008 started out normally: cotton had been stuffed between my ears sometime throughout the night; my body had gained an enormous mass as well, its weight pulling me deeper into the feather bed, my heavy legs swinging to the edge like cast iron bells; my feet encased in iron felt ready for the ocean floor; I pushed my body upright using arm strength and sat motionless for five minutes in a kind of stupor; a man with no goal; no alarm; no schedule; no deadline. Simply a man with time. And this time continues to tick, on and on, and in this stupor it doesn’t stop, it simply continues to drum, and I am oblivious to its march. In the mornings time fails to exist; there’s simply the stupor and the weight and me, or what I think is me, trying to read the details of an unfamiliar map in poor lighting and without spectacles.

It took two hours to complete my morning routine which Nick and I have outlined on two cards and placed in the bottom edge corner of my medicine cabinet. The cards remind me of the order of bathing: brush teeth, start shower, hair, body, face, shave, squeegee, towel dry, brush hair, after-shave balm, deodorant, patch, hang towels. If I fail to use the list I forget where I am in the sequence and either stop altogether or restart from the beginning. My inability to concentrate on even the most menial activities is another symptom of my depression. I suppose I’m fortunate though, in this fog I find myself in, I don’t really judge the degree of my disability. It’s not as though yesterday I had two legs and today one. This disease is invasive: it’s a brown-out; not quite a black-out, but enough surge to switch off delicate systems and place them in a suspended mode. Next came dressing. The simple selection of items was daunting. Incapable of processing difficult code, I simply grabbed shorts, shirt and sandals and hoped I wouldn’t look like a clown.

I was exhausted by the time I made it to the garden. Nick was there working on a crossword and presented me with a cup of coffee. I opened my laptop and quickly discovered I was unable to concentrate on even simple navigation. Pulling myself up from my chair I hoisted myself onto the sofa and fell back asleep.

During sleep I began to hear the quiet invitation of the river. “Come to the river,” it asked. “Come to the river, it’s quiet here,” it pleaded.

I heard Nick’s voice far away, in the distance, miles behind me, “Harlan,” he yelled. I awoke, looking longingly for the river but all I saw was Nick, “I heard your yelling outside, about going somewhere; where were you going?” he asked. “To the river,” I said, “It was calling me.”

After a number of telephone calls I found myself in our car speeding to the hospital to be admitted. By this time exhaustion had overtook me. My resolve against the disease, its voices, its demons and magic and trickery had ceased. I was a harm to myself. I was in significant danger and unstable and required hospitalization in order to save my life from itself.

Upon entering the hospital the stark reality of mental illness was immediately evident. Once announced that you require psychiatric care you are moved through a well-oiled machine. I was placed in a triage room and asked a simple question: have you had homicidal or suicidal thoughts? A simple “yes” answer thrust my welfare to the front of the line: papers were shuffled, calls were made, registration was completed, body searches conducted, personal belongings and shoes removed and bagged, a personal security guard assigned, and the single most powerful yet profoundly simple right was revoked: my right to freedom. I had now become a legal liability requiring constant supervision in a small waiting room with other psychiatric patients. And I was incapable of leaving without seeing a doctor. I had been incarcerated by my own volition.

I found it impossible to sit in the holding cell with severely psychotic patients: one yelling someone was stabbing her; another rocking and laughing/crying; a third belching and retching; a fourth pacing like a caged cat. I asked to sit outside, right next to the pen. My guard agreed. About two hours into this episode there was a guard shift-change and I was ordered – ordered to get back into the holding pen. When I flatly refused the guards began to don rubber gloves and said, “Don’t make us lay hands on you, sir! Do not make us lay hands on you!” as though I were a criminal. I said, “I’m simply depressed! Christ, had I known it was going to be like this, I’d have simply killed myself!” and Nick and I walked back into the cell.

Nick and I sat in that holding cell for a total of five hours until at last my name was called and we (Nick, my guard and I) were escorted back to an empty emergency examination room. A nurse threw back the curtain and asked Nick to step out while she interviewed me. She was an angel, I thought, looking at her compassionate eyes and heavenly smile. She inquired as to why I found myself at the ER and I explained the days events. I told her that my language got out of hand, I talked of suicide but had spoken out of turn, and I really just wanted to go home with Nick and did not wish to be admitted.

A platoon of doctors came and went and finally I was discharged honorably into the night. It was determined that I was not a suicide risk and would see my personal psychiatrist the next day and that Nick would have to remain at my side until that time.

This mental illness has kidnapped my sanity; it has revoked my right to free thought and happiness; it has sentenced me to life with a chance for parole only if I continue to absorb Paxil at night before bedtime. But even this mindful incarceration, this disease and its disability pales in comparison to the penal colony operating under the guise of patient safety.  Having willfully turned over my right to freedom was the most eye-opening, chilling, humiliating experience of my life and one in which I will not soon forget.

My One and Only Rolex

Fifteen years ago I developed an obsession for Rolex watches which eclipsed practically every other interest or desire.  Its greatest impact was felt by my spouse: He was hostage to my unyielding resistance to any gift that wasn’t a Rolex.

Eventually Nick’s patience and resolve buckled beneath the burden of my expectation.  One Christmas he handed me an easily overlooked brown paper bag.  As I took it from him I felt a significant heft; I heard a steel bracelet shift at the bottom; I spied a bezel and Oyster case peeking out from an afterthought of concealment.  I slowly lifted the folds of vaguely familiar tissue paper which revealed the indubitable shape and renowned style of the classic stainless steel Rolex.  He said he’d been looking for one (for almost a year) when the week before a dealer called to say that a customer recently presented a used (and much older) Rolex as a trade-in and it’s “as-is” retail price is with-in Nick’s price range.  He purchased a Rolex manufactured in 1958 (the year of my birth) and it wasn’t until this year did I learn the historical significance of this watch.

A month later I found myself overheating in a Puerto Vallarta hot tub.  I dragged my lobster-red body to the swimming pool and jumped in.  Upon surfacing I heard Nick ask for time. While wiping away the stinging chlorinated water I noticed that there was moisture condensing on the inside surface of the watch crystal.

The Rolex watch is often perceived as an extravagant luxury and status symbol outshining its fundamental purpose: telling time.  But Rolex, SA (manufacturer) has played a significant role in the history of the wristwatch.  Rolex, SA can lay claim to being first at: automatically changing date on face; show two time zones at the same time (GMT Master (designed by request of Pan Am pilots); automatically changing day-and-date on face; earning “chronometer” designation (meaning that it’s mechanical movement is extremely accurate and consistent that it can be used to navigate ships.  But the fundamental and most notable characteristic (which it achieved first in 1926 and again in 1953) is being waterproof (1926); not water resistant; waterproof to a depth of 330 feet BSL (1953).

Obviously Nick’s gift had forfeited that foremost characteristic.

I was greatly disappointed that the Rolex Nick had worked so diligently to uncover had been compromised by irony: its fundamental purpose (time keeping) was also its assassin (time passing, i.e. years of use).   I took the infirm watch to the only certified Rolex repair center in North America (at the time) and was saddened by their conclusion: it would cost more to rebuild than the price Nick paid.  A friend gave me the phone number of a reseller in Georgia that represented Rolex watches on consignment.  Overnight I received three brand new stainless steel Rolexes from which to choose.

When I slid on the first, then the second, and finally the third I had exactly the same reaction: These Rolexes had lost their mystique, their meaning, their value; these were simply very expensive watches.  (And frankly, my time isn’t that valuable!) 

The watch given to me by Nick was, in my opinion, the only true Rolex because it was the one he generously gave me.  I wanted that Rolex; and I wanted that Rolex to function like any other Rolex.  So I returned to the Rolex repair center and placed it in their expert hands.  Six months later it was returned to me in pristine condition.  It is now thoroughly serviced every three years to keep it in working order.

So why did I share this with you?

You may get what you ask for in life, and while it may not be exactly what you wanted, you were very fortunate to have received it.  It may be imperfect, or damaged, or used.  But it is less about what you’ve been given, and much more about how you hold it, what it means to you, and how you care for it.

Bipolar Diagnosis Is Not An Insanity Defense

I’ve been paging through comments left recently at Chicago news sites regarding the recent revelation that Representative Jesse Jackson Jr. (Congressman, Illinois) has been diagnosed with Bipolar II and is currently experiencing a major depressive episode and is being treated at the Mayo Clinic.  He’s been on a leave-of-absence since June when he was discovered by his father, Rev. Jesse Jackson, exhausted at Rep. Jackson’s Washington, DC home.  The family took Rep. Jackson to Sierra Tucson Treatment Center in Arizona, then moved him to the Mayo clinic where he remains, undergoing treatments for his significant depression.

If the picture I just painted was about your husband or wife, your child, a relative or neighbor, teammate, fellow parishioner, acquaintance, sister-to-the-father-of-your-daughter’s-fiance’s-birth-parents, or celebrity, your reaction, most likely, would contain differing degrees of empathy based in part on your knowledge of mental illness, specifically Bipolar II.  But what if the picture I just painted was about a politician in a state known for its bipartisan political corruption.  The reality that 20% – one in five – of the last century’s governor’s have been indicted or convicted of felonies in Illinois is a damaging statistic to all Illinois politicians.  Damaging is one thing, but suspicion on a federal level and a House Ethics Committee investigation for ties to imprisoned former Illinois governor Rod Blagojevich is quite another.  This federal investigation provides a significant foothold of suspicion in Rep. Jackson’s June disappearance and yesterdays news story confirming his diagnosis and treatment for major depression (one-half of the mental illness, bipolar).

The vitriol posted in comment sections of Chicago area TV stations extolling Rep. Jackson’s disclosure of mental illness and gastric by-pass as a creative and sympathetic smoke screen hoping to derail the federal investigation or, at the very least, to mitigate its voraciousness.  The assertion? That Rep. Jackson was in the middle of a hypo-manic (the other half of the mental illness, bipolar) episode which characteristically emboldens the patient to behave dangerously, generate grandiose plans well beyond his normal specter of life, and indulges in dangerously poor judgement particularly in highly sensitive or personal areas of the patients life.  If Rep. Jackson never mentioned (prior to the Blagojevich sting) that he’d like to advance his political career by winning a senate seat and then suddenly (and privately) begins the high-stakes game of buying (rather than campaigning for) a senate seat, Rep. Jackson could defend his uncharacteristic behavior as that of his manic-self (though at the time he was unaware of his mental illness), and that if his bipolar diagnosis was being properly treated (and he was compliant) he would’ve steered clear of any illegal activities.

Which is, by the way, a creative and sympathetic defense.  But our legal system does not recognize bipolar disorder as insanity, and therefore cannot be used as a defense in legal proceedings.  It could pluck on the heart strings of those on the House Ethics Committee, but any preferential treatment Rep. Jackson hopes his bipolar disorder might garner will be sanctimonious.  However, if the Committee (and subsequently Federal Prosecutors) sense blood in the water, Rep. Jackson’s recent disclosure of personal and private information will be sympathetically and respectfully noted.  And then the hounds will be unleashed and will, eventually, tree the red fox.

But what I find the most deplorable is the velocity and distribution of judgement by every-day citizens whose faith in politicians has been crushed by an unending parade of scandal, corruption, and greed.  Jesse Jackson Jr.’s job is a congressman.  Jesse Jackson Jr. also happens to be human, a husband, a brother, a son, a friend, and now part of my bipolar II world. 

It is shameful that the suspicious and the quick-to-judge deny their empathy to the mortal and vulnerable  Jesse Jackson Jr. who is suffering horribly, whose life is teetering on pharmaceutical roulette, who goes to sleep dreadfully depressed and wakes to the loathsome, disastrous, and painful reality that he must learn to live with bipolar disorder, not suffer from it.  To those casting stones, humanity and empathy aren’t yours to keep; they are given.  I pray that one day you won’t stare into the cold eyes of a stranger wholly disinterested in your immediate suffering because of a far-off suspicion of guilt.

Maybe Bruce Banner, Tony Stark, Logan, Bruce Wayne & Clark Kent Were Bipolar

I’ve identified the significant trigger, which, if pulled, catapults my otherwise sensible, responsible, and respectful self into a derivative of me, but one which possesses out-of-this-world dynamism akin to superhero’s or mutants.  The physical me doesn’t change, just the degree of acumen and acuity I’d refined in furtherance of a twenty-year career playing The Fool to a cadre of Somebody’s.  These heavyweight’s attained their ascendency via marriage; owning an avaricious, pugnacious and predatory law firm; partnership with an iconic architectural firm; ruthless attorney for corporate raiders.  Not one cared about procedure; they simply expected what they’d requested.  Failure was my burden to bear and under which I would suffer.

Only once did I return empty-handed: “I flew to Florida; drove to the grove; oranges are out of season; no juice.”  She pushed her Eames chair away from her desk and stood in front of me, “Do I look like an idiot to you?  I mean, when you think “idiot,” is it this face you see?  Because that’s precisely what you so deftly hand-delivered.  But I didn’t ask for an example of an idiot, did I?  I mean, if I did, which I didn’t, but if I did then you could get a mirror from one of the secretaries.  You wouldn’t simply fire-up the Ol’ Gulf stream and coast to Florida (at $2,350.00 per flight hour plus pilot time, hotel, fuel,, and food).  No, no explanations: I asked for orange juice from “Lily’s Grove,” of which I own by the way: Oh!  Didn’t you know that?  What?  No investigation before you saddle-up and zoom to Miami?  When I’d heard from Jorge that a “chiquito desmandares” demanded that he sell him orange juice for his “gillpollas cacia” the only conclusion I could draw was, “Mulligan must think I’m an idiot!”  Since you’re absolutely certain there’s no orange juice from Lily’s Grove, just for fun, let’s see if I might know someone who could help. . .Buenos dias, Jorge. . .”

That lesson (failure) provided an essential insight: if a heavyweight asks for something that has the appearance of impossibility, they already know where and how to get it.  They simply aren’t interested in doing it for themselves.  Self-effacing, tenacious, and propriety could be helpful behaviors in discovering a source for this item.

Only when forethought (plan B, escape route) is absent and I discover that I’m in a wholly defensive position with no options does this derivative of self appear.  This derivative is my super-hero or, as I now recognize, my manic-self (who I will name “Heartless”).  “Heartless” has a single purpose: self-preservation amidst unyielding stress, confusion, and fatigue, the by-products of an extremely complicated problem or series of problems which causes inescapable mental burden and my organic belief that failure cannot be considered because of its dire consequences and the real-life ramifications to everyone involved.

“Heartless‘s” appearance goes unnoticed and the logjam that promoted his incantation begins to loosen and the stalled efforts discover renewed vigor, and less and less sleep is needed, and more and more and more organization and meticulous paperwork are demanded.  “Heartless” remains present for varying lengths of time: Sometimes 3 months, sometimes a year.  But his denunciation follows the same pattern: “Heartless” turns his attention away from the situation of which he was borne, and on to me, which he sees as the real victim of the entire circumstance.  And then he uses every weapon in his arsenal to create as much collateral damage as possible: spending huge amounts of money on items which I’ve wanted, yet dare not buy (dog, tattoo, Rolex GMT II, 55″ TV, fully outfitted wood shop, custom-made Japanese fountain pen); ingesting too little or too much of my medication; abhorrent social behavior; and the worst and most pointed, vehement, and hateful: accusations and ceaseless arguments with my spouse.

The moment someone, anyone really, recognizes that I’m in the midst of a manic crisis, “Heartless” disappears.  And all that’s left behind is a meandering trail of damage, some salvageable, some not.  Destruction is definitely his foot print.  But I’ve considered too, that perhaps “Heartless”buys and says and behaves in ways some tightly-tucked-away part of me wants to behave or say or buy.  But I, like so many of us, have toed the civil line and buried our uncensored selves in a nook no one will find.  Wouldn’t it be tragic if we’ve been taught that decorum dictates that superhero’s remain in comic books and not shopping at Prada.

 

An Open Letter to U.S. Representative Jesse Jackson Jr.’s Mayo Clinic Physicians

Dear Dr. So-and-So, et. al.:

I read with tremendous interest and a degree of de ja’ vu the front-page story written by Ms. Michael Sneed in the Sunday, August 5, 2012 Chicago Sun-Times which reported that U.S. Representative Jesse Jackson Jr. recently collapsed and had become completely debilitated by depression.  Upon reading the story, I experienced a staggering degree of recognition, for I too, have (and continue to do so) hit the same kind of wall as Representative Jesse Jackson Jr.: A crippling mental illness diagnosis, specifically major depression (changed later to Bipolar II) following gastric by-pass surgery.

The story reported that Ald. Sandi Jackson (wife of Representative Jesse Jackson Jr.) doesn’t know if her husband’s depression is connected to his weight-loss surgery.  As a person who finds himself in a very similar situation the development of major depression after elective gastric by-pass surgery) I would like to suggest that determining the cause of this on-set of depression is irrelevant and nearly impossible to determine.   Based on the past four years of failed orally administered pharmaceutical treatment attempts, I strongly suggest that you titrate the dosing levels of psychotropic therapies dramatically (50%-75% higher) or increase the potency of the psychotropic therapies to compensate for the substantial degree of malabsorption (the basic tenet of Duodenal Switch Surgery) caused by the significant reduction in stomach volume (up to 70%) and the dissection and rerouting of a large percentage of the small intestine (which is largely responsible for caloric absorption).  If the goal of the Duodenal Switch surgery is to limit volume and reduce absorption of food ingested orally, then common sense suggests that anything ingested orally will greatly lose its effectiveness (especially if the drug’s efficacy during clinical trials was based on subjects that did not undergo weight-loss surgery).  Except now we want the body to absorb what it’s ingesting!

I endured two needless years of trial and error attempting to discover pharmaceutical regimen which would lift me from depression and put a lid on my mania.  My psychopharmacologist knew I’d undergone gastric by-pass surgery a decade earlier yet refused to consider malabsorption as the cause of the ineffectiveness of every single prescription.  Frustrated by my psychiatric team’s myopia, I returned to the care of my internist; he was the first doctor to consider that my body’s ability to absorb oral treatments had been reduced by as much as 75%.  If an increase in dosage is impossible, then a different delivery system (IV, inhalation, transdermal patch, suppository) must be manufactured.   Please don’t waste Representative Jesse Jackson Jr.’s time prescribing the usual litany of drugs at their recommended doses: It’s akin to trying to stop a charging elephant with a water pistol.

Morbidly obese patients who were diagnosed as depressed and were being treated successfully through oral medications prior to gastric by-pass surgery discovered that post surgery their depression worsened and their pre-surgery oral medication treatment failed to reproduce the expected degree of pre-surgery success and relief.   Your patient is in crisis; your patient is experiencing a major depressive episode; your patient’s natural ability to absorb what he ingests has been compromised to the degree of ineffectiveness; your patient needs an extraordinary, preposterous, wholly unimaginable antidote, not a boilerplate solution. 

I salute the Jackson family for supporting Representative Jesse Jackson Jr. through this difficult period and wish them all God’s speed.