When I Was A Boy, A Doctor’s Insight Was Law

 

aadoctor

When I was a child and was literally dragged to Dr. What’s-His-Face for an annual check-up (less a check-up and more a ritualistic cadence of tsk, tsk, tsk’s) as he poked and kneaded and cold-handedly fiddled with my . . . which backs away from coldness . . . and shy’s away from evaluation like a cub scout whose self-built car elicits jeers from his Scout Master (who also happens to be his dad).  The snap of gloves and odor of soap which resembled anti-freeze gave the doctor time to compose his subtle and sensitive conclusion:  “He’s too fat and getting fatter and his fat is hiding his . . . which, for sanitary reasons may require the removal of . . . which was when I buckled my Indian Beaded Belt and disappeared until hours past dusk when a neighbor found me shivering beneath the front porch.

That incident was a painful secret which I’ve carried on my back for fifty years and continues to cause retreat when doctor’s or lover’s reach out.  Such a sad burden to carry because of one unsympathetic phrase from a stranger who had no right being a pediatrician.  I often wondered how he treated his dogs.

My mother’s ignorance and prostrating to figures of authority always meant that any run-in with any adult possessing even a pinch more aacopauthority than her resulted in stern and week-long pain.  Just what exactly did these arrogant and sadistic adults possess that was never crossed?  They had been appointed to their position because of educated insight which was never, ever, EVER questioned..

Which, of course, perpetuated a multi-century tradition which has continued even to this day.  Most doctor offices have a small-framed notice somewhere above their “All services must be paid TODAY!”  reminder which reads something like,  “My profession hasn’t been questioned or challenged in three hundred years, so don’t try to be the first today!”  And in you go to be examined, quizzed, and questioned only to receive a prescription scribed in ancient Egyptian and an “order” for physical therapy.

aaangryguyDo I sound somewhat angry?  Of course I am!  Doctors get paid enormous salaries yet complain about the escalating costs of malpractice insurance.  Malpractice insurance exists because professionals are trusted and believed and paid.  And for this degree of faith we get an educated guess of what might be ailing us.

But this is what I’m REALLY angry about: Two doctor’s at Froedert Hospital assured me my brother Rich did not suffer a stroke based on a CT scan.  It was 48 hours later when I insisted they perform an MRI.  Voila’!  A clot in a vein feeding the occipital lobe (responsible for eyesight).  Because of unconscionable arrogance my brother is legally blind while these two doctors suffer NO consequence.  Upon discharge from Froedert, I was told that Rich was totally blind due to A) The Stroke and B) A severe seizure two days later.  I made decisions based upon the information told to me by staff in the Stroke Unit.  And guess what?  He isn’t blind!  Albeit his eyesight has been significantly compromised, but his field of vision is approximately 17″ in diameter!  And the staff at Froedert?

And the worst example of guesstimating occurred this past weekend when Rich suffered a severe heart attack.  The errors in order of aapuzzleddocappearance: A) Someone at the acute rehab facility removed his DNR bracelet, yet never informed the paramedics that he had a DNR order in effect; B) The paramedics, unaware of the DNR order, couldn’t inform the ER staff;  C) When Rich went into arrest they performed heroic measures to yank him back to life including five minutes of chest compressions resulting in several broken ribs and the insertion of a temporary pacemaker to maintain his heart rate (why didn’t anyone call me while they repeatedly beat Rich?  They called me after!)  D) An ICU doctor called me and informed me that the ER stepped beyond Rich’s wishes and now, NOW I’ve got to decide if and when we reverse their . . . their, what . . . their adrenaline infused jump to action?  And when YOU do decide he will . . . be gone.

For nine hours I held firm to Rich’s wish: DNR. And I would honor his wish just like I’ve always honored him. And I aastoplightwouldn’t allow my own emotion, hope, or desire to shake my resolve. I spent nine hours picking up strength like a child picks dandelions. And upon my arrival at his room in the ICU he was semi-conscious, breathing on his own, and occasionally howling in pain as he coughed with broken ribs. The equivalent of The Cuban Missile Crisis was over and Rich, contrary to what the ICU doctor emphatically informed me, was alive, on his own, without my intervention. And even though he’d crossed that line, he’d come back, I think, just so we could laugh at the old, standard jokes as though it was the first time we’d heard them!

And those doctors? The heroic and uninformed professional, and the cardiac-specialized professional made two BIG mistakes and continue to work without consequence for their egregious and painful errors. Alas, that three hundred year old tradition continues.

 

The Short Reach of 9-1-1

What does fifteen minutes mean to you?   To me, it’s a short walk with Jenni or the edgy, flinching time I endure, while sharp picks and mirrors and a fistful of rubberized fingers examine my mouth.

To a heart attack it’s pay dirt; to a stroke it’s a killing; to an overdose it’s long enough; it’s 25% of your critical hour.

It was the way he answered the phone and repeated “nauseous”  that prompted my intervention and a feeble attempt at reassurance, “I’ll call 9-1-1,” which began a 15-minute byzantine pursuit through a labyrinth of indifference, ignorance, misinformation, unyielding tenacity, irrationality, and finally the grossly delayed ringing of the fire department serving my brother‘s address.

In this age of instantaneous access to millions and millions of useless and the occasional entertaining tidbit of useless information, we assume that a federal infrastructure would be installed and activated and by dialing three simple digits you would be transferred to the emergency department serving your father’s address.

But there isn’t.  Instead you’re passed along with great indifference until, smartphone in hand, you’re barely capable of performing search after search of increasingly familiar street names and coverage maps and administrative offices which you call in desperation and quickly evaporating hope.

Fifteen minutes while your brother or sister or father or mother follow your misguided instructions based on years of same-city-9-1-1-calls.  Who would ever think that soliciting an emergency service would be impossible.  Impossible?  Really?  Impossible, while your brother or sister or mother or father sits alone in their home slowly dying.

Without question, the federal government should appropriate whatever amount of money it will cost to rebuild a one-city call center into a network of transferable calls to the exact city where emergency help is needed.  Please, spend less of our money on bombs which kill scores of innocent people in faraway countries and use it here at home for emergency call-centers purposefully designed to assure the caller that first responders are on route to your brother or sister or mother or father’s house to save their lives.

 

 

My Brother Rick (aka Dikes, Rich) Condition Post-Stroke

asstroke3Last Thursday, a few minutes past noon, I called my brother Rick in Milwaukee (it had become a ritual of sorts especially while driving), and he answered in an odd tone which gave me pause. He began to complain of escalating nausea to which I urged him to see his personal physician.  He failed to remember his physician or the terrible diabetic wound which almost led to amputation or his two-month in-patient hospital stay. I astroke1told him I’d call 9-1-1 and ask that he be taken to West Allis Memorial Hospital ( policy dictates patients be taken to the nearest hospital). However the paramedics discovered atrial fibrillation (fluttering heart beats) which alternately peaked and diminished and therefore paramedics informed me that they were headed to a critical cardiac unit at St. Luke’s Medical Center.

However, St. Luke’s didn’t have a bed open, so Rick was taken to Froedert Lutheran Medical Center. After tests and a CT scan the ER team began antibiotics to stave off a small area of pneumonia in his right lung.  Rick remained on the general medical floor until the results of an MRI showed he’d suffered a severe ischemic stroke (an obstruction within a blood vessel supplying blood to the brain) in the occipital lobe (at the rear of the skull and is responsible for vision). On Sunday afternoon he was transported to the Stroke Unit (one of just astroke2a few in the U.S.) where he was resting comfortably.

On Monday, June 18 Rick suffered a significant seizure which greatly diminished his short term memory and eliminated the peripheral vision on his right side.  I’ve visited and talked via telephone with him this past week.  The cadence of his speech has slowed, he’s practically immobile, he’s approaching clinical blindness, and finds difficulty in fundamental motor movements like holding a cup.  But as he told me earlier this week, “I ain’t going to be like this forever, you know!”

I’d like to ask that anyone reading this post to consider sending him a get well card.  I’m sure your sentiments would help replenish a hopeful spirit during difficult times.  For those of you who send cards, thank you; for those that haven’t, please reconsider.  Send your cards to:

Richard Didrickson
Froedert & Medical College of Wisconsin
5-NW Nursing Unit
9200 W. Wisconsin Avenue
Milwaukee, WI  53226

 

Rare = “$$$$$”

arareobject1rare: adjective

DEFINITION: exceptional, extraordinary, rarefied, recherché, scanty, unimaginable, few, admirable, A-OK, cat’s pajamas, commendable, cracker jack, exquisite, hunky-dory, meritorious, praiseworthy, superior, valuable, worthy, superior, 24-karat, elite, exclusive, exquisite, popular, precious, top-drawer.

I’ve never owned or bought or inherited or found or stole any thing that’s been classified, determined, researched, and stamped rare.  The arareobect2moniker rare is itself rare!  According to the free website, Rarity Guide (www.rarityguide.com), the nomenclature “Rare is far more than the number of units produced.  “Instead, we factor in many additional factors including popularity, demand, age and collectibility.”  On their website they stress educating the public and collectors about collectible objects.  The sobriquet rare is mentioned only when an object reaches the threshold of eighty-one percent (81%) to one hundred percent (100%): The most sought after objects in a collectible category.
Except in medicine where a condition or disease when codified rare indicates under-funded research meaning that the tightly budgeted, yet interested researchers exhaust their paltry budgets thus terminating further research and flatten the idyllic hope for a treatment long before it’s ever presented to the prudent pharmaceutical companies.
arare oject4
It’s simple: It’s unprofitable to manufacture a treatment which less than one percent (1%) of patients living with these diseases will be prescribed.
So, diseases are rare as well, but no one is a collector.  Now, what am I going to do with the four I have?
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PAIN

apain

PAIN relentlessly reminds us of life;
PAIN is cruel, brutal, and inhumane;
PAIN cannot be proved nor disproved; much like many religious deity’s;
PAIN is private and personal and corporeal to you;
PAIN is isolation;
PAIN is an absent invitation and then another and another and . . . ;
PAIN strong-arms false confessions and prosecutes the innocent;
PAIN in prison is orthodox especially to insistent innocent’s;
PAIN is torturous;abodypain
PAIN is not contagious;
PAIN is in your head;
PAIN isn’t where you think it is;
PAIN is an expression;
PAIN might be masked by pills;
PAIN if unforgiving is chronic; disbelieved; every second of every minute of every hour of every day of every year of your life;
PAIN when chronic is a life sentence with little chance of freedom like the innocent suspect now inmate;
PAIN is mental, is physical, is reactive, is imagined;apainedemotion
PAIN is a taste of insanity;
PAIN is tangible unlike its abstract converse, painless, which slips by unnoticed;
PAIN alienates us from the painless and yet, PAIN censures the vague conjecture of painless;
PAIN painfully illuminates the oft overlooked pleasure of painlessness.