Those Damned Little Pills

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For the very first time since I swallowed my first 20 mg. tablet of Paxil four-and-a-half years ago, I finally understand why so many people living with mood disorders stop or want to stop ingesting those damned little pills. Those little pills, like slap-happy lovers, amend their  promises of change immediately after they’ve failed you once again.  One more chance?  One more try?  We’re narrowing the field; one day we’ll strike the right chord, just have patience.  Patience?  What patience?  NAMI (National Alliance on Mental Illness) reported that adults who live with serious mental illness die 25 years earlier than other Americans . . .

Imagine yourself standing next to the Greyhound bus to say good-bye to Hope as she takes a window seat, looking at you detached and hopeless2indifferent.  Your worst fear is happening: That Greyhound bus is leaving you utterly Hopeless.  Hopelessness is a loaded .38 in the nightstand on your dad’s side of the bed; hopelessness is impressionable and interested in alternatives; hopelessness implies that the rough-housing and agonizing conflict you’ve accepted as life is all yours, pal, so grab some gloves and climb into the ring!

Eighty-sixed and cast aside, people with mood disorders are often adrift and desperately clutch to any buoyant object to preserve the credo of the awringingdowncast, that missing people like you are rescued.  But there is no rescue.  Or search.  No one even noticed you were gone.  But then serendipity zips past on her jet-ski waving and reassuring her return. Immediately you squeeze and squeeze again until every bit of blue sky is wrung from her fly by.  You weave strands of hope into bonds of promises and cling to them for their six-week trial, hoping your wholeheartedness created the perfect environment for the mood stabilizing drug to speed down your arterial on-ramp and slide into your bloodstream, easy-sneezy!

Nope.  Nothing.  Nada.  That bitch Hope and her batty cousin, Serendipity played you once again for the hapless Sad Sack, the lunatic adrugcompdesperate for clemency, the believer of broken promises in the form of a pill.  Those damned little pills!  The pharmaceutical industry’s great hoax endorsed by psychiatrist’s, dispensed by Pharmacists, and dutifully swallowed with some water and a handful of hope.  Hope that it’ll take; make a difference; do something; ease my burden; make me laugh.

At my desk 30 minutes after waking, the gravity of hopelessness, fatigue, and apathy plunge my mood underwater; the depressive side of bipolar ajetleads to chronic pleas for the manic cavalry to save the day.  Hold on, I mutter to myself, Just hold on for the pills; they’ll carry you far away from despair. Into my mind’s ground fog I wander further out on the pier when a carefully apportioned packet of dextro-amphetamine salts (think F-22 Raptor Fighter Jet in a mach-1 vertical climb); mood-stabilizer (think the F-22 Raptor running out of gas); and anti-depressant (think glider) are swallowed to ensure mood stability.  Followed by a pair of diuretics to reduce significant edema caused by heart failure and pulmonary hypertension.  At last I down two pain medications and one muscle relaxant for back and knee pain associated with recent weight gain caused by heart failure and venous insufficiency.

How did life become a scene from Soylent Green?  Not so long ago I’d lounge sleepily awaiting the skipping return to bed of my spouse.  Now mycomforter mornings are strict regimens in a very specific sequence to assure all medication has been ingested.  I too, would like nothing more than to flee from this pill-filled merry-go-round so-called Life and run back to that sanctuary of pressed sheets, downy comforters, famished pillows which swallow everything, and quiet, inside-joke laughter reserved for those blessed with wellness.

Instead, every morning I sit at our kitchen table despising those damned little pills. 

 

Life: A la Carte or Prix Fixe?

I live life à la carte; by à la carte I mean by choice, especially my choice.  My brother for instance, abdicated his causative influence on life, and welcomes whatever life serves at whatever life costs.  In other words I enjoy the risk of tasting uncertainty while my brother prefers a routine cuisine.

When life is à la carte you can select depending on what’s offered, or you can request what you want and risk denial.  There are many people who anticipate rejection and therefore never make the request.  Are they ducking rejection or avoiding the chagrin of wonder.

Part of living life à la carte is the opportunity of choice; to determine things you like and things you don’t like.  For instance:

EXAMPLES OF THINGS I DON’T LIKE (but others of influence intervened)

  1. I don’t like fresh tomatoes; I do like most everything made with tomatoes because 1) It doesn’t look like tomatoes; and, 2) It doesn’t taste like tomatoes.  During the first decade of our relationship, I drove my partner home for the holidays and slept for a few hours before leaving by 5:00 am.  I reluctantly slid from beneath the warmth of the down comforter like a young dawdling duckling suspicious of life outside the nest.  Being atomatounfamiliar with the layout of their home, I was quiet as a church mouse on roller skates in a dark china shop chaperoned by a cat whose moniker was MouseOust.  I felt like a fighter lolling on the ropes desperate to get his footing; my intention of a tippy-toe takeoff was aborted when his mother’s voice encouraged me to eat before departure.  An encouraging mother-in-law at 4:30 a.m. motivated me like a drill Sargeant at boot camp.  She puttered about the kitchen when my partner shuffled to the kitchen table and sat at my side. Your mother insisted I stay for breakfast at which time he leapt from his seat like a cricket and raced to the kitchen.  I could hear them intensely talking in German when my partner walked to the table and whispered, I’m sorry, I tried everything including allergies, but she insisted!  Did you make a lot of noise to wake her?  I made some noise I sheepishly admitted at the exact moment his mother served me a piping hot, dense, and practically impossible to swallow without chewing cup of German Kaffe and a plate covered by a dozen rolling cherry tomatoes.  And then she sat next to me like a demanding nurse hovering over a boy, a tablespoon, and cod liver oil.  The first one exploded in my mouth when bit down; the second I tried to swallow like a gum ball; my partner quickly ate three and the other seven I tucked high inside my cheeks like chipmunks.  I was little more than five feet out the door when the tomato and coffee breakfast reappeared.  Right down the fender of their Plymouth Wagon.
  2. I don’t like dentists; I used to not like the sort of things dentists do, until I realized that dentists chose to do these things like an interrogator and his “talking tools.”  Actually, I’ve never liked dentists sin
    dentistce the age of three when I recall my father dragging me through the front door of Dr. Olson’s Dentistry Office and it’s tagline etched into the front window: “You’ll be happy to talk after just one visit!”  Every adult within a thousand feet knew that I didn’t want to be there; my father had to lift me, then hold me while Dr. Olson wrapped nylon-webbed belts around my shoulders and stomach.  Once I was trussed and couldn’t squirm, Dr. Olson slowly approached with that tiny mirror and that double-ended pick with which he digs cavities to fill.  “Open wide” the doctor ordered.  Nope.  Then came the first of three slaps to the back of my he
    ad, each one harder than the last; the last one produced a prickly feeling inside my head and polka-dots wandered about in front of me.  My father, his Pabst/E&J brandy breath, and the unstable, intimidating tone of his threat, said so close to my ear dampening it, made sure I understood what and how he’d express the embarrassment he’d suffer because of my shenanigans.  Well, I don’t fault my father because I was only three, and intimidation followed by threats of brutality was how he’d handle anyone threatening his authority, even three olds.  He told me to open my mouth followed by another whack.  I complied and the two men actually seemed proud that they’d broken the colt.  Sort of.  My father told me to open my mouth, but he never told me what to do next.  So I waited patiently for Dr. Olson’s right index finger to worm inside my mouth then WHAM!  My jaw snapped shut on Dr. Olson’s finger and the melee that followed can only be described as a fumbled football during the fourth quarter of the Superbowl.  We all know what happened to me, but it was peanuts compared to Dr. Olson who received five stitches in his finger and told my father that I was not welcomed at his practice muttering, “damn little mongrel.”
  3. I don’t care for urologists.  No, that’s not true.  I don’t like a urologist’s index finger every six months.  But enough about that.
  4. I detest liver.  I’ve tried it at my partners prompting but the peculiar gritty texture and the overpowering smell of a dank basement doused any desire.  Perhaps I was a child in a family of cannibals in a past life, and while waiting at the dinner table Mother Cannibal served a steaming platter of liver, to which I exclaimed, “What, Liver again?”
  5. I have an absolute phobia of physical therapists.  Do I doubt their degree of success in eliminating my excruciating pain, or have I become accustomed to Western Medicine‘s preferred method of treatment: Prbackpainescriptions designed to mask the symptoms yet never correcting the reason for my discomfort; I’ve become dependent on prescriptions for that simple reason:  They manipulate your reasoning of treatment asserting that the absence of symptoms infers successful intervention, when it’s really sleight of hand and our assumption that doctors cure our ailments.  Disappear and cure are 
    not synonyms, no matter how persuasive your physician may be.

(Ex-Representative) Jesse Jackson, Jr.: Denouement

Hoodwinked?  A definite possibility.  Bamboozled?  Most likely.  Hornswoggled?  Should be considered.

Whatever you want to call it, Mr. Jackson Jr. disappeared six months ago; five months ago Mrs. Jackson Jr. read a prepared statement which delicately described Mr. Jackson Jr.’s sudden absence without divulging the root cause.  Mrs. Jackson’s calculated disclosure purposefully neglected any explanation of Mr. Jackson’s bizarre journey from Washington, D.C. to an addiction retreat in Arizona and finally his willful confinement at the Mayo Clinic in Minnesota.  Someone with considerable influence strongly urged Mr. Jackson to depart Washington, D.C. without a peep and bee-line himself to the addiction retreat in Arizona.  Certain accounts told of Mr. Jackson reaching out to Reverend Jackson who, it was said, immediately went to aid his son.  Upon arrival Rev. Jackson described Mr. Jackson’s condition as serious: weight-loss, insomnia, restlessness, hopelessness, fatigue, and a general feeling of depression.

When I presented very similar symptoms at the pinnacle of my ascension to mania, I was strongly advised to immediately be evaluated by a psychiatrist in order to determine if I was clinically depressed.  Were my self-medicating behaviors indicative of a substance addiction?  Certainly, especially if that’s what you’re looking for.  But a member of Congress with the best health insurance in the country?  Did he seek an evaluation from a psychiatrist in Washington? Is it likely that a psychiatrist prescribed an addiction treatment facility in Arizona while ignoring Walter Reed Army Medical Center or the Psychiatric Institute of Washington?  Doubtful.  Are we to believe that no one in Mr. Jackson’s inner circle was curious as to what other illnesses might Mr. Jackson be suffering when presenting his specific symptoms?

I must admit that a fair percent of public comments insinuate that timing for political gains has been, from the very start, the predominant focus.  His alcohol addiction (reason for in-patient treatment at an Arizona Rehab Center), bipolar diagnosis (reason for his transfer to the Mayo Clinic), and clandestine exodus from Washington (to protect his privacy while en route) is, to his discredit, a shrewd, calculated, and well-executed chain-of-events whose purpose, Mr. Jackson’s representatives said, was to seek the best treatment centers for his addiction and subsequent bipolar diagnosis.  One month passed before Mr. Jackson’s representatives confirmed he was at a HIPAA protected treatment facility.  Then he was transferred to the HIPAA protected Mayo Clinic.  Then he ran for re-election without a campaign: no appearances, no advertising, no lawn signs.  And he won 64% of the vote!  Finally, six months after his twilight departure from Washington, the requested and ultimately expected communiqué was delivered to House Speaker Mr. Boehner in a two-page letter of resignation citing health issues and a federal investigation.

And that’s it.

But. . .if he has an addiction and suffers from bipolar disorder, then his timing couldn’t be worse for his career and the reputation of his family.  But then again. . .if it was all a ruse to buy time and strategize his reaction to the upcoming federal indictments, then his actions were dishonest, cowardly, and ignorantly insensitive and offensive to those of us who struggle with mental illness on a daily basis.  But what if. . .he is an addict and bipolar and anticipating federal indictments?  It’s difficult, even for me who defended him on this very blog, to be sympathetic.  After all, he’s a crooked politician who stole tens of thousands of tax-payers money for personal gain, who then fled under the guise of addiction and mental illness to protected locations for six months, abandoning his job, his constituents, and those who voted for him, in order to clean his own house and strategize his legal response and perhaps a plea bargain.  Oh, and he’s an addict and suffers from bipolar disorder.

Well Mr. Jackson, I suffer from bipolar disorder and face that fact every single day head on. . .I don’t hide behind it. . .and I certainly don’t break the law and then use my mental illness to garner sympathy.

Truth is Mr. Jackson, you’re a coward, a liar, and a thief.  The Illinois politician’s trifecta!

Mental Illness: Metaphorically Speaking

It’s like a rain delay during the sixth inning of the seventh game of the World Series

It’s like everyone else forgot your birthday;

It’s like dining alone in, what was, your favorite restaurant;

It’s like all your clothes turned into varying shades of gray;

It’s like, who cares?

It’s like, I Want My Life Back!

It’s like a clogged drain.

It’s like I never heard the punchline.

It’s like the weariness of a fourteen mile boot camp hike.

It’s like losing your sense of smell.

It’s like living senselessly.

It’s like being stood up in a crowded restaurant without your wallet/purse.

It’s like sunny days, wagging tails, and giggles from children are intolerable annoyances.

It’s like being unhappy for so long you’ve forgotten what happiness was.

It’s like your friends don’t call as often.

It’s like vanilla, just vanilla, only vanilla, vanilla.

It’s like time’s hands got tired, quit, and moved to Florida.

It’s like there used to be normal, but now there’s this new normal which isn’t better or improved; the new normal is the generic of normal.

It’s like that dull ache of heartbreak.

It’s like the Dead Sea (lowest), Antarctica (coldest), and Macquarie, AU (cloudiest).

It’s like this every day.

 

The (Un)expected Outcome(s)

Fear stops me like a two by four to the back of the head.  Real fear.  Not anxiety, not nervousness, not hesitation.  The kind of fear that rushes to a moment of quiet like children playing musical chairs.  Real Fear.  Life or Death Fear.  My fear has been the writers-block-in-residence for the past fourteen days.  My fear was a distraction; then my fear developed into an annoyance; then fear and I were bedfellows, fear being the last thing at night and first thing upon waking that knocked on my mind’s front door.  What is my fear?  I’m afraid I’m dying.

As you know, in November, 2008 I was classified as bipolar.  This determination included established and biased reasoning for my life on a seesaw: I was predisposed to life as a yo-yo by genetic roulette.  This milestone was marked by a simple psychiatric ah-ha.  Their specialty professes its ideological conjecture as formative and their ignorance evidenced by the devastating news that they can’t offer a cure, or even a likely protocol.  Instead they offer an indifferent forecast of pharmaceutical trials often resulting in failure and cautioned of a likely future weathering mania-driven misjudgments followed by the doomed deciension into a grey melancholia exacerbated by the digestion of manic destruction and attempted repair.  And then there’s that overcast statistic regarding effectual suicides: 40%.

Fear immediately hit the brakes and sent my entire life crashing headlong into the windshield. Fear sat immobilized by truths: I’ll only be free of madness if I’m one of four out of ten.  Fear’s rationale was logical and pragmatic; why endure decades of depression and delirium only to draw the same conclusion?  I’d decided to ignore Fear’s advice and try, one day at a time, to continue my membership in the sixty percent club.

But two months ago despite my determined effort to avoid that 40%, a wholly separate yet equally incurable physical condition reappeared. Its symptoms are aggravated and impairing; inexplicable weight gain (45 pounds in six weeks); undermining fatigue; breathlessness following exertion; intentional harboring of fluid forced from arteries and causes swelling and immobility.  But just like the Rambler my father owned in the early sixties, no one could determine the cause of the knocking.  That is, until the 1959 V-8 wagon blew a cylinder and sent my father’s first love to every car’s destiny: an auto scrap yard seen from the interstate.  Will my erosion be similar?  An unidentifiable murmur like a whispered yet repeated rumor one day erupts and immediately my initial litany of enigmatic symptoms is sensible, albeit much too late for prevention and most likely too late for intervention.

I’ve been blindsided by these illnesses and worse, hobbled by their improbable cures.  This simply was not my life’s expected outcome.  Or so I believed until very recently when I remembered what a mentor once suggested as a remedy to writer’s block:

“Writer’s block excuses lazy writers; Write about what’s preventing you from writing; Suddenly you’re mindlessly writing and only when you pause do you remember what was prohibiting your expression, but you can’t remember why.  When you can’t write, you must write.  The living face death every day — and then go about living!”